JD Thomas/Jordyn Blaze
06/19/06~01/24/04 12:01 am/5:01pm 6lbs/6lbs3ozs
Nov 07, 2009
March 6th 2007~ It has been a rough weekend around here. The lady that I worked with passed away Thursday evening with her close friends and family by her side. I wasn't there. I wasn't scheduled to work, but I had stopped in to check on her and to see her family. We all knew that there wasn't much time left. I left and she died 20 minutes later. At least I got to say good bye. Her funeral was Monday. It was beautiful and there were lots of tears. Despite all of her challanges this lady made life fun! She was strong and brave. I will miss her. A Lot. But I know that she is in a place where nothing hurts her anymore. That makes me smile. I have decided to resume college courses although i have now switched my major. I will be studying for my bachelor's degree in psychology. I am doing it all online but if I don't do it now I am never going to. I have to do it! Classes start March 20th. I had to go out and buy a new car. Well, not a car, but a van. I have a picture of it but I don't have them downloaded onto the computer yet. My car was just not worth all the work that had to be done to it! I like the van. Lots of room. Now Jordyn doesn't kick the back of my seat when I am driving. Although I did put it into a ditch yesterday. Driving home from Linda's funeral I decided to take a back road to save some time and hit a drift of snow and spun the van around into the ditch. I wasn't hurt and neither was the van but i did have to pay a pretty penny to get it towed out! What a rip off! Then I was talking with J's mom on the phone and found out that a relitive of J's house caught on fire last night. It was gutted. Nothing can be saved. I guess no one lived there but it was full of antiques and funiture that was very old. At least no one was hurt! I feel so bad. Fires are horrible. Please keep them in your prayers. Jd's hearing test was rescheduled because I didn't trust my car to go that far. It is now on the 28th of this month. Someday soon the poor boy will get hearing aids! Well that is all from our little snowed in neck of the woods. Schools were even closed today. We had a state of emergency issued until 6:30am. People getting into accidents all over the place. Lots of wind that created a negative wind chill and blowing snow. White out conditions. And I thought spring was close! HaHaHa Hugs Christina
Febuary 28th 2007~ Life is crazy. I am 25 years old and I am just learning that. So many things are happening and I must say that most of them are not good. The boys' great-grandfather is not doing so well again. Please keep him in your prayers. He needs them. We need them. I have been working a lot. A woman that I work with isn't doing so well either. I have been working in this line of work for a long time and this is the first time that I have had to take care of someone who is going to die. It is so hard. Emotionally. It is draining. I still have to do my job but I find it hard. The emotions are so new that I am still trying to work them out. Please pray for her and her family. There isn't much time left. JD is doing well. He keeps growing and growing. I tell him all the time that he needs to stay a baby but he doesn't listen. HaHaHa We have been working on sitting up but he still hasn't got that yet. He is really unstable. However, he will get on all fours and rock back and forth. He didn't have PT last week because school was closed so his PT didn't know about him getting on all fours. I wanted to show her and wouldn't you know that the little stinker wouldn't do it for her! Figures! He has his hearing test in a couple of days. Hopefully after that hearing aids won't be far behind. Yeah!!!!!! Jordyn is doing well also. He had his evaluation for Happiness House for his speech delay. He qualifies for 1/2 day of school with a speech therapist. It will be good for him to be able to go and play with kids his age. I think that he gets tired of playing with JD. Although Jordyn does very well with the baby. He always want to help change him and feed him. He will get on the floor and play cars with JD. It is the cutest thing in the world! My car is dead! Well not yet but soon. I took it to a garage to have them look at it and the repairs that need to be done total more than what I paid for the thing! Time to look for something new I guess. I must say that with all the bad stuff happening it sure has reminded me what is important in life. My family. I go home everynight and hug and kiss my boys so tight that they hate it! But at least I go to bed everynight knowing that I showed them as much love as I could. Thank you for still reading up on us. It is nice to know that so many people care. Take care and talk to everyone soon. Love, Christina
January 28, 2007~ HAPPY BIRTHDAY TO JORDYN!!!!! My baby turned 3 years old on the 24th. I had the alarm on my phone set to go off the minute that he was born, 5:01pm. He didn't really understand what all the fuss was about but I think that he did know that it was his birthday because people kept saying it to him all day. I made M & M brownies and we had ice cream. We are going to do something bigger for him in Febuary. They sure do grow up fast! I have seem to come upon a run of bad luck in this new year. I was really hoping that things would start to look up for us, but something bad keeps on happening. I am about ready to push my car off of a cliff! It is just one thing after an other with that hunk of junk! First the breaking system now the tires! I am hoping to get things all straigthened out around here. I haven't had time to do much of anything these days. As for JD, he is doing great. He just had his 6 month check up even though he is 7 months. they put him a month behind to account for the fact that he was born early. He is just about 20 pounds. Just a few ounses shy. He is 27 inches lond and his head is 45 cm. Right on track in the growth department. He is slighlty behind in the developmental area. Although his doctors feel that when he gets his hearing aids he might just catch up. They did find a small heart mummer. He had one when he was born but it closed. They are just keeping an eye on it for now. Nothing to worry about. I hope that this finds all of you readers well. Bless you.
December 21st 2006~ I finally have some time to write an update on the boys. We have had some very exciting things happen in the last week or so that I would like to share with everyone. Jordyn got his first haircut! I finally broke down and did it. Jordyn has not had a hair cut ever! I didn't want to risk loosing all the his curls, but it was just getting out of control. He wouldn't wear the cap that goes around his neck and he did start to cry until I held his hand. He sat still for her and let her cut it. He was such a good boy! She did a wonderful job! BEFORE:
AFTER Doesn't he look cute! And the curls are still there! I even saved some to put into his baby book. Jd has done a couple of new things. He can now grab both of his feet. He was having trouble grabbing the right foot, but he has it now!
We also tried feeding him cereal. However, most of it ended up on his chin and shirt and not much actually went into the tummy. We are going to try a little everyday and he will get the hang of it soon.
We did have JD hearing test appt but we were scheduled for the wrong one and the lady that we had to see wasn't in so it is rescheduled for January 4th. I was bummed! It is only a little while longer I guess. Good things come to those who wait! JD is 6 months old! I can hardly believe it! He is getting so big now and is learning to do so much.....he is going to show these doctors a thing or two I think! His current stats are updated on the front page. He had to see his GI earlier than the 8th of Jan. I had a training for work that day and she wanted to repeat of the labs sooner than that. He had that appt today. He is doing well. She upped the dose of actigall because he is gaining weight and he is now on prilosec for his acid refulx. She didn't have any real concerns though....liver numbers are still a little high so we have to have more blood work.. The same old same old. I scraped my knuckle one day. It started to bleed but I got up and washed my hands. It was sore but it seemed to be healing. Wouldn't you know! I got an infection in there. Take a look and the picture above and you can see it only left hand. They had to cut it open so it could drain and I am on medication to get rid of the infection. I couldn't even use my hand for a few days! It is healing now and seems to be better. Not much else is going on here. Just trying to tie up some loose ends for Christimas. Rush! Rush! Talk to everyone soon. Christina
January 13, 2007~ HAPPY NEW YEAR! I am sorry that it has been a while since I last updated. Actually, there really isn't that much to report.....no news is good news right? Christmas day went well. The boys got too many toys, but isn't that always the case! I am going to have to have a talk with Santa and tell him to go easy next year! Ha Ha.
Jordyn really wanted a helicopter and he got one! JD didn't really care and he decided that he was going to take a nap!
There are tons of pictures so I hope you all enjoy them! 2007 has started off with a bang! My car needed some repairs and when they were doing the repairs, they found a lot more work that needed to be done. Isn't that how it always goes? 400 dollars later my car still needs some work and we are broke! The boys and work have been keeping me really busy. JD is doing more and more every day. He will be starting OT and speech very soon. He had to wait until the offical diganosis of complete hearing loss was established which it is now. He is being scheduled for a repeat of his sedated hearing test, and ABR. At the same time they are going to do a repeat of the newborn hearing test. This way they can narrow the hearing loss down to a region in the ear and give him the best possible options. It is a slow process even though I wish we could fly right through it! Jordyn is being enrolled in happiness house too. He will attend their preschool program and receive speech services also. Jordyn will be 3 in a few days! I look at him now and it amazes me how fast the time has gone by! My baby boy is a big boy now! Well, that is really all from this end! I hope that this finds everyone well and happy this new year. My thoughts and prayers are with you all! Love and Hugs Christina
December 10th 2006~ Well, I am offically a 1/4 of a century years old! I turned 25 yesterday. 25 seems so young, but I feel so old! I had to work so we didn't do anything exciting....that is ok. I got some not so good news from my GI doctor the other day. When I had my last scope done they took some tissue for biopsy.....I got a letter in the mail telling me that the results of that test warrent an appointment in his office. They don't tell me the results though....wonder what could be wrong now....just add it to the list I guess. Christmas is fastly approaching us. I can't believe how fast time is going by......in just a few days JD will be 6 months old. It needs to slow down just a little bit so that I can cherish the little moments even more than I already do. Today, Jordyn came up to me and gave me a kiss out of no where and said love you mommy. Almost brought tears to my eyes.....moments like that make it all worth it! There isn't too much going on here....just going and going and going! LOL! I'm like the energizer battery. HaHaHa. JD is doing very well in PT. He has been trying so hard to roll over. He tries and tries and tries but he just can't get it. Soon. He has also been trying to laugh. He does this bevis and butthead thing if anyone knows how they used to laugh. He is still now on cereal. Tried that and he just isn't ready. He will let us know. Things have been quiet here. I really don't like quiet....it means that something is brewing in the near future. Never fails! I can count on it.....no matter what we will make it.....just like before. Warm wishes to you and your familys! Christina
December 8th 2006~ I uploaded the pictures that I was talking about......hope everyone enjoys Christina
December 06, 2006~ Well, the only reason I updated the site was because I have some really cute pictures of the boys that I wanted to share, however I am unable to upload them to the computer for some reason. I will share them as soon as I am able. Thanks for checking up on us! Christina
November 27th 2006 I hope that everyone had a wonderful Thanksgiving. Ours was busy was so nice. We haven't been able to eat dinner together in a few weeks so it was great to do that again. Poppy, Berma and Uncle Tommy along with our good friends came to dinner. We all ate too much but it was very nice. How is all the shopping coming? We haven't even started yet! I realized the other day that I haven't put an update about Jordyn in a while so here is one now. He is too smart for his own good. He just has to see you do something one time and he wants to try. He usually has it after his first try. He has a speech delay but we are going to send him to Happiness House for that. He is just a boy!.......Sports, trucks, cars, dirt and very active! Jason wanted a boys boy so he got one! LOL Independant as can be...wants to do everything himself! And that temper! Oh my goodness...watch out if he doesn't get his own way! (He takes after his mother so at least he gets it honestly!) Potty training is going very slowly...we will get there when he is ready.....we are not pushing him....just letting him do it on his own. He has a chore list now and loves to do them. He helps pick up his clothes, and feeds the animals. He will also try to help with the dishes but we end up with bigger messes than we started with. He amazes me everyday at the amount of stuff he can remember. He sings his ABC's and knows his 123's. We are working on colors now. Everything is green right now! LOL He makes me laugh at least 5 times a day at all the cute stuff he does and says! I am truly blessed. God gave me such a wonderful gift! Well, I fixed up the site...it was a mess for a few days. Happy Holidays to all. Christina
November 22nd 2006~ Today was JD's 4 month check-up, and his neurology follow-up. I am happy to announce that we didn't receive bad news at either appointment. At his well-child visit, he weighed in at 16.5lbs, 26.5 inches long, and his head is 42cm. He is doing really well. He was smiling at the doctor and just really happy. The doctor is making a personal referral to the hearing center in Rochester....which I have heard is one of the best. He will have his hearing re-checked and then he will be fitted for aides. This is such wonderful news. I can't wait for the moment when JD will be able to hear my voice again. He hasn't heard anything since he was about a month old. It will be a joyous day......they are calling next week with the appointment date. We got even better news at the neurology appointment. She hadn't seen JD for almost 2 months...way before they concluded that he had a milk protien allergy. She couldn't believe how big he was....she was amazed. She did her thing with him and after she was done she told me something that totally blew my mind......she believes that JD doesn't have the brain damage that she thought he had at the first visit. He was smiling, very reactive to he surroundings, cooing, and very social. Can you believe it? I have waited so long for someone to tell me that......what wonderful news! She would like to see us again in 4 months to re-evaluate him. But as of right now she just recommends the PT, and the hearing aids....other than that she thinks that he is almost on track! Poor baby had to have 4 shots and 3 attempts at drawing blood! He had 5 band-aids on his at the end of the day! He is such a good boy! I kept waiting all day for bad news.....things have been going so well that I feel like something bad is bound to happen....it always does....just when I think we are finally on the right road........you all know how it is. I knew driving home for the hospital that everything was ok....want to know why? It was a beautiful day. It was about dusk and the sky was just beginning to darken...there wasn't a cloud in the sky. I look at the road and then back up at the sky to see a set of clouds right in my direct view. Those clouds looked like an angel....they hadn't been there before...I swear....it was a clear sky! Tears came to my eyes....and for the first time in a long time I felt a sense of peace and calm. Was it a sign? Well, whatever it was it sure cleared my head. Well, I have to go and bake some pumpkin pies for tomorrow....we are having thanksgiving at my house this year....well, me, Jason, the boys, berma, poppy, tommy, and our friends and their daughter......I am not cooking...we don't want the fire department at my house! Poppy is a great cook so while I am working from 2p-6p he will be preparing our feast! I hope to have lots of pics.....we are going to offically try JD on cereal tomorrow....so he doesn't feel left out! LOL I hope that everyone has a WONDERFUL and THANKFUL day! Love, Christina
November 17th 2006~ Sorry that it has been a little while since I have updated. I didn't have access to the internet for a bit. There has been a lot going on around here since I last updated. I don't even know where to begin. Let's start with JD's lab results. They didn't have good news for us. His liver enzymes AST and ALT are on the rise again. When he had labs done at the end of September both numbers were near 70, now they are both in the 700's. The doctor wants to do a repeat of the labs this coming week. She is hoping that they have peaked and are started back down. If not, he may require a little more testing. It isn't good news, but I will take it! JD started his PT this week. He will be working on rolling, extending his arms to reach for toys, pushing himself up when he is on his tummy, and looking to the left. She said that she will probably need to see JD for a little while, although he is not too far behind at this point. There are just a few things that she would like to see him do. He will reach for a toy while he is sitting although his movements are really jerky. However, he will not even attempt to reach for a toy while he is laying on his back. She noted stiffness in both the arms and the legs....really noticable in his hands. His reflex in his right ankle is not there. We see her 2x a week so hopefully he will progress fast. I felt so bad because on the first day she brought all of these toys for him to look at and nothing intrested him. Nothing caught his eye to keep his attention. She had better luck today....she brought a toy that vibrated. This is the toy that he reached for when she had him in a sitting position. We won't see her next week because of the holiday so she left the toy so we could work with him when she can't. On a sad note, please keep another little boy in your prayers.....he was just a few months older than JD but he passed away on November 11th due to biliary atresia. A very rare liver condition. He received part of his liver from his mother in October but had SEVERE complications after. Lindsey, his mother has a webpage if you would like to leave a comforting word in his guestbook. http://www.caringbridge.org/visit/jacksonriley Jackson faught for a long time and was at the top of the transplant list but one never came. I ache so bad for their loss..Such a strong little boy.... Are you an orgain donor? Is it noted on your DL? Does your family understand your wishes if you are a donor? Do you donate blood? Just a thought..... I work two jobs now so the days are busy.....but I will still update when there is news....I have more pics but I have to get them on the computer first. Probably put those on here tonight. Keep looking! Christina
November 6th 2006~ JD is finally catching up to babies his age!!!!!!!!!!!!!!! At his last GI appointment she was concerned because he was below the 5th percentile in all areas. Now, he is up to the 25th-50th percentile in all areas! He now weighs 14lbs 15ozs, he is 25inches long, and his head circumfrence is 40 1/2 inches! Such a big boy. Since he did so well changing his formula she is even more convinced that he has a milk protein allergy. She ordered more lab work to see how his liver is doing. She did a physical exam and believes that his liver is no longer enlarged! Back to normal is how she put it. Hopefully that numbers from the lab work are ok...last time they were still high. He is still on the Actigall. I was hoping to take him off of it because it is causing really loose stools, but she doens't want to take him off of it until she knows for sure that everything is ok with his liver. She put him on previcid for acid reflux because he is still choking on spit up and is constantly cranky and gassy. Hopefully it works if not she will have to think of something else. We have to see her again in the beginning of January. The appointment went well and I have no complaints. They didn't tell me anything that was bad and for that I am greatful. I get the lab results at the end of the week. Keep your fingers crossed that the numbers are low! Hugs Christina
November 5th 2006~ So, this afternoon before I went to work, JD was sleeping peacefully on the couch in his car seat. Our friends daughter Marianna was sleeping next to him. She woke up coughing and JD JUMPED! Did he hear her? I can't stop wondering and now I want them to re-do the hearing test. Maybe JD's brain is finding ways around the damage to his nerves in his ears and he is starting to hear. I was so excited when he jumped like that. It gave me a tiny window of hope that maybe things won't be so bad. Tomorrow is the GI doctor. Keep your fingers crossed that all goes well. Hugs Christina
November 4th 2006 Today is a sad day for me. A little boy that I have been praying so hard for lost his courageous battle with a very rare liver condition known as Bile Acid Synthesis Defect. He had been waiting for a new liver for a long time now. His mom just got the ok to have blood work-up done to see if she could be a living donor. Just a little too late. He was only a couple of months older than JD. Please keep Dillion and his family in your prayers as this has to be one of the hardest times in their lives. I have been really busy the last week or so. I don't mind though. It is good for me. JD is doing well. He just loves Jordyn. All he has to do is spot Jordyn across the room and he starts smiling. They are going to be great friends I hope. I tried to explain to Jordyn today that JD cannot hear but I think most of what I said went right over his head. I don't know how much I expected a 3 year old to understand. I added some new pics to the site. Please check them out. JD has his follow-up with his GI doctor on Monday. The neurology got re-scheduled. I hope that they don't want to do anymore testing. He seems to be doing well hopefully they will just leave him alone for now. He has been through so much already. I tried JD on solids the other night and he just isn't ready for that yet. Maybe soon but if it doesn't come that is ok too. He has started to try and reach for toys but his movements are really shaky....he should be starting PT soon. The other night I was at my friends house and we were talking a little loud. She asked if we were bothering him and I said....it is ok...he can't hear us. She felt so bad for asking such a silly question. She knew that he was deaf so she said she didn't even know why she asked. I hope people don't feel obligated to feel bad for us. We don't feel bad for us.....yeah we were delt a blow that knocked us clear into the sky and turned our whole world upside down but we are really ok. We can do this. Even if JD can't walk, won't talk, or do things that other kids can do at least he smiles....that is more than enough for me. I live for that smile. No need to feel bad or sorry. Can't change the past but we can make a difference in the future. Once again please keep Dillion's family in your thoughts as you talk to God tonight. I pray that Dillion is walking with the Lord free of pain and basking in his light! Hugs to you all Christina
November 1st 2006 Well, it is only an half an hour into November and I had to switch the page. I was so sick of it. Jordyn had so much fun trick or treating. He would go up to house all by himself and say 'trick or treat". He was spiderman, but he wouldn't keep the mask on. JD was a pumpkin. I have lots of pics but I forgot the camera so I will have to post those tomorrow. He got way too much candy that he will never eat! He won't forget about it though now that he knows he has it. I have already raided the stash. I bought a bad just in case we got anyone but with us all the way in the county that didn't happen. I have two jobs now. The one that I got today I have been trying to get for three months! I will be working with adults who have disabilities. I am really excited and can't wait to start that. I will get some awsome training with this employer. All of you who prayed for JD please pray for two little boys who are fighting for their lives. They both need new livers FAST! Their names are Dillion and Jackson. If you could just keep them in your prayers at night maybe with everyone praying together the angels will hear them faster. Well, off to work for my first full day tomorrow. I feel like a new kid on the first day of school! Silly huh? Hugs and have a good night Christina
Jordyn is in the yellow @ 4 months and JD is on the right @ 4 months. They look so much alike!
October 30th 2006 I am a working woman again. I almost cried today as I left JD to go off to work. I shouldn't have to. Nothing really new to report. Just hanging in there. I am still sore but nothing that I can't deal with.....I have been delt worse right? We carved pumpkins tonight I will have to post pics later. Have a good night Christina
October 27th 2006 Life was a lot slower in the hospital. I should think of it as a mini-vacation minus the beach and the palm trees. Everything has been crazy since I stepped foot in the door. But....I am glad to be home to my family....especially my boys.....God I love them. Poppy took me home since I was a little "loopy" and when I got out of the truck, Jordyn was on the front porch saying...Momma...home over and over. He gave me a big hug and with a sigh of relief he said Momma home. I think he missed me. Jason said he asked where I was and Jay told him the doctor's because I was sick. That was the easiest explination for a 2 year old. Jason greeted me with a big smile and a long hug. He said he was glad to have me home. I bet he is...He has been with Jordyn for almost a week straight. I told him...Now you understand all I have to do in one day! HaHa JD looks like he gained ten pounds since I was gone. He is getting so chunky in the face...just like Jordyn used to be....I have some pics I found of Jordyn when he was about JD's age...they look a lot alike . I still have to download them onto the site but I will post them when I do. Thanks Berma for the albums! I thought they were lost forever! I am glad to be home and hope that there are no complications so that I don't have to go back. I am still in pain now and then but I hope it gets better. They just have to heal. I may have two jobs in the next week or so. Both of them I want. They are both part time so together they will be full time. Wish me luck! A big thank you to Berma and Poppy was looking after JD. It helped soooooooo much! I know that he can be a handful, but you didn't give it another thought! Well that's all for now Christina
October 26, 2007 I know that it has been a while since I have updated, but I have been in the hospital. Friday night I got sick, and I thought that it was the flu bug that is going around. By Saturday my stomach hurt so bad that I had to go to the ER. They told me that it was probably the flu but if I didn't get better or the pain got worse to go back there. I ended up going back the next day. They ran 2 CAT scans, and ultrasound, and a x-ray of my stomach. The lining of my stomach was very swollen and irratated. They admitted me into the hospital to run some more testing and it was found that I have 3 large ulcers, 2 small ulcers, and a hiatal hernia. I had to have a scope done for them to find all of this out. I had a camera stuck down my throat so that they could see the inside of my stomach. I just got out of the hospital a little while ago, and it feels good to be home! I missed my boys so much! Now I know how JD felt when he was in the NICU being poked and prodded by needles and testing equipment. It isn't fun. Anyway, I am on 4 different medications and I have to go see the doctor in a week to find out the results of the biopsy that they did on my ulcers. The ulcers could be caused by a bacteria. If that is the case, then I will have to be on more medication. I personally think that they are caused by stress. I have been under a lot of that as of late. Maybe I should just take it easy? That is funny isn't it? Well, I am still pretty drugged so I am going to get going but I will update again soon. Hugs to all Christina
October 21st 2006~ 9:53pm What a day we have had here. Today we celebrated Austin, Adreonna, and Ashlynn's birthday. Those our JD and Jordyn's cousins. Austin will turn 5 Nov. 3rd, Adreonna turns 3 on the 27th of this month and Ashlynn turned 1 on the 17th of this month. The kids love to play together and Jordyn never wants to leave. Here are some pictures.
Jordyn, Austin and Adreonna
My mom with all her grandbabies
Ashlynn not too sure what to do with her cake We also went to the pumpkin patch today. It was a little cold, but I think Jordyn had a good time. He got to ride on a train, pet some animals, go through a corn maze, and played in a fun house!
Jordyn in the playhouse
What JD did the WHOLE TIME
Jordyn driving the train
Jordyn and his pumpkin There are more pictures in the section marked "pictures". I even downloaded some more video. Just use the link on the front page to view them. I am glad that we got to get out today and that Berma went with us. It did her good to get out of the house. Oh yeah....at JD doctors appointment, they changed his formula once again but I don't think we are going to stay on it. It is a milk-based because they now think that he has reflux. But it has tiny particles of rice in it to keep him fuller longer. He is back to eating every 2 hours but no more than 4ozs. He should be a six ozs now. We didn't see his regular doctor...we have that appointment on Monday. They prescribed him Zantac.....Hopefully soon they will get everything under control.....poor baby! Have a good night...Thanks for checking in on us. Christina
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