JD Thomas/Jordyn Blaze
06/19/06~01/24/04 12:01 am/5:01pm 6lbs/6lbs3ozs
Nov 07, 2009
Our cat died last night: Actually it was Jason's cat. That thing would cuddle right under the blankets with him all night and stay there until Jason woke up in the morning. We got home from the hospital last night and he wouldn't even move. He died about 2 hours later. We were on our way to take him to a 24 hour vet hospital, but he died in the car. Jason isn't taking it too well, and it just happened at the wrong time. We are not sure what happened. He was only 2.5 years old, and very healthy. Rest in Peace Bam! As for news on JD, he is doing very well. I got to hold him for 2 hours yesterday, which is the longest that I have been able to so far. Jason is still a little afraid to hold him, and said that he can wait until all of the tubes are out of him. It is a little scary because you don't want to pull anything out, but that doesn't bother me, and I would hold him all day if they let me. They are not going to put the tube back in because he is doing so well off of it, and in fact they are going to start feeding him a bottle on Friday. They were able to take out one of the IV's that were going into his belly button, and once he is done with his medication, they can take out the other one, and that is when he can start eating formula. I called early this morning before I went to sleep to check on him, and he was giving the nurse a hard time. I could hear him crying on the other end of the phone. He just wasn't crying, he was screaming. She had just changed his pants, and he was mad at her for disturbing him. It is great to hear him cry. Any little noise that he makes, I am amazed by it. I can't seem to get enough. There is still no talk of when he can come home, but at this rate, we are hoping that it is very soon. Everything is moving in the right direction. Just keep praying, it seems to be working wonders. Jason and I have finally decided that I will have my tubes tied when the time is right. The doctors have advised me that it is best not to get pregnant again. If I do, the same thing would happen. My body has antibodies now, and it will forever, so getting pregnant would just put the baby in danger. We had decided that 2 children was good enough for us anyway, but that was a decision we had made together before JD was even born, not one that I wanted taken from me unwillingly. It was very hard to comprehend that they were telling me that I can't have any more children. In a way it was devastating. I think it would be for any woman. Well, that is all the news I have for today. I will update again later. Thank you for all the kind words of encouragment and well wishes. And don't worry, all of the legal things will be taken care of in there own time. We just want JD home with us right now, the other stuff can wait. Hugs Christina
Angels were making JD smile today:We have very good news this evening. JD had his air tube removed at 5am this morning. He is now on just the nose cannula(the little plastic piece that goes up the nose). He is doing very well off of the venulator. They are a little worried that he may get tired, if that happens, they may have to put it back in, but it is out for now. He has a hard time breathing when he is upset or someone is messing with him. He still has fluid in his lungs that he is trying to cough up. As of this eveing he was a little over 50% O2. It takes him a long time to calm down once he gets worked up, but when he is sleeping they can lower the O2. I was only able to hold him for half and hour, and then he was having trouble keeping a steady breath, so they took him from me. While I was holding him he kept smiling. Some say gas, but I believe that he was happy to have the tube out, and he was telling me that everything would be alright. They were talking of removing the IV that goes into his belly button, but they have decided to wait until he is consistantly at only 50% O2. He may need another blood transfusion. They have had to take a lot for testing, and he may be running too low. They will know more once they do the morning tests. It will be a long night of waiting. But no matter the news tomorrow, today was good. It was better than we had expected. Please keep praying. There are new pictures(sorry they are dark, it was dark in the room tonight to keep it quiet). Doesn't he look beautiful without that tube? A lot of people have been asking how I am doing, and I guess that I should be honest. I have tried to be strong. Even the day I had to leave him in the hospital, I was strong, I didn't shed a single tear. But today was hard for me. I know that it was a good day, and for that I am very thankful. But a person can only hold so much emotion inside without some of that emotion over flowing. I had to go for a drive, to cry. I am not one to cry in front of others. I prefer to do it alone. But I let all those tears, and all of my anger, and all of my emotions finally come to the surface. While I was with JD tonight, as I watched him try to catch his breath, as he looked into my eyes for only the 2nd time since his birth, I became angry. How could this have happened? All I needed was a simple little test, and then a small shot. All of this could have been prevented. How can some people be so negligent? How could have something so small, been overlooked? So many questions, and not too many answers. I don't know if I will ever understand.
The story: It was Saturday June 17th. I thought that my water had broken. I called the doctor and he told me to come in and be checked. I was only 36.5 weeks. I still had a whole month left in my pregnancy. I went to the labor and delivery floor, where I was hooked to a monitor to check on the baby's heart rate and movements. When the doctor checked me he said that my water had not broken, but he wanted to leave me on the monitor a while longer just to get a good "happy strip", as he called it. I was on the monitor for three hours. The doctor just wasn't seeing what he wanted to see. I explained to him that I had worked all day, and that I was tired. He agreed to let me go home and get some rest, but I was to come back first thing in the morning to have a non -stress test. I went back to the hospital at 7am the next morning. I was hooked to the monitor for an hour, and the doctor told me that she wanted an ultrasound because the monitor strip still hadn't made any improvements. Well, she didn't like what she saw in the ultrasound at all. When I got back to my room, I was told the worst news of my life. Our baby was very anemic, he had massive amounts of fluid in his adbomen, and that he needed to be taken right away, by c-section because he would not tolerate the stress of labor. If they didn't take him by c-section, his chances of survival were very slim. As it turns out, our baby had Rh incompatibility disease. This is a very rare disease these days because it is almost always caught early enough in pregnancy to treat the baby. It is also very hard to explain, and it has taken us a while to fully grasp what it is all about. The short version is that my body detected the baby's blood as a forgein body, and attacked his red blood cells. I was trying to "fight off an infection", or so my body thought. Below is a few links that we give you a better understanding of the disease. http://www.woman-health.org/virtual/Rh_disease http://www.webmd.com/content/article/4/1680_51841 I was transported my ambluance to Strong Memorial Hospital around noon on Sunday. That was proabably the longest ride of my life. I was then admitted to the High-risk OB unit there. I was once again hooked to a monitor. They took some blood, and put in an IV. It took them a few hours to figure out what antibodies I had in my blood, so that they could put those antibodies into healthy blood for the baby once he was born. JD Thomas was born at 12:01am on June 19th 2006. Just a few minutes shy of Father's Day. He was 18.5 inches long and weighed 7lbs 8ozs(this was not his actual weight, 2lbs of it was fluid in his body) Jason and I only got to see him for a breif moment before he was taken away by the doctors. He didn't even cry when he was born, and his APGAR score was only 4 out of a possible 10. Laying there getting stitched up, I was sure the next time I saw my son he wouldn't be alive. I was taken to recovery, and didn't get to see my son until 9am the next morning. I didn't know what to expect seeing him that morning. I was scared, and had met so many doctors and nurses that I couldn't keep anyone straight, let alone all of the information they were throwing at me. I had so many questions and things were moving so fast, but once I saw JD everything else just melted away, and all I could think about was him. He was hooked to so many tubes and IVS. He was so swollen and puffy. There were 5 sets of phototherapy light on him. He was enclosed in a bassinet. I wasn't allowed to hold him. That was the hardest part. I just wanted to hold him and let him know that everything was going to be alright. I spent 5 days in the hospital. Most of my time was spent just sitting with JD, softly talking to him and holding his hand. He made vast improvements while I was there. Although for every good thing that happened, we always had some sort of set back. I guess it is to be expected. He was a really sick little boy those first few days, but once 48 hours passed, the doctors became optomistic that he was out of danger. Every day he seems to be doing better, and we can't wait for the day that we get to bring him home. Please keep following our story. I will be updating under the stories headline. I want to thank everyone who has sent their prayers and well wishes. We can use all that we can get.
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